Turner Syndrome and Hormone Replacement

Turner Syndrome and Hormone Replacement
Turner Syndrome and Hormone Replacement

Turner Syndrome and Hormone Replacement

Girls with Turner syndrome will need to take some hormone replacement, due to the fact that their bodies can not make enough of some of them on their own.  Some hormones that a girl with Turner syndrome may be deficient in include:

Estrogen

Progesterone

Thyroid Hormone (if they have Hashimoto’s)

Testosterone

if you are a young adult with Turner syndrome (like me) you may have had a doctor put you on a birth control pill and tell you that it will give you all of the hormones that you need.  However, most birth control pills do not have real progesterone in them, which is essential to protecting you against breast cancer and to your over all health.  I would recommend talking to your doctor about bio-identical hormone replacement.  That is what I personally do.  To read more about all of this, please see my book “As a Butterfly: Turner Syndrome Survival Guide” and read the ‘Commonly Overlooked Problems’ section and ‘Tips for You’ section.  Make sure you ask your doctor about checking your level of all of the above hormones.  (I was severely deficient in testosterone, which can have many negative effects.  This is commonly overlooked in women, but girls with Turner syndrome may need it.)  Having the correct hormone replacement will help you to feel and look better.  Your overall physical, emotional, and mental well being will improve greatly when all of your hormones are balanced.

What have been your personal experiences with Turner syndrome?  Please let me know in the comments section.  Thanks for reading!

6 thoughts on “Turner Syndrome and Hormone Replacement”

    1. I have a 14 year-old daughter with Turner Syndrome XO. She is about to finish up growth hormone therapy in the next month. She has currently been taking medroxyprogesterone tablets (10mg) the first 10 days of the month & wearing a Vivelle estrogen patch (.025 mg) in order for her to have a menstral cycle. Now her endro wants to switch her to a a bc pill (Apri) now that gh is about to end. I am very interested in knowing more about which natural bioidentical hormones would most likely be effective rather than a bc pill. Her endro does not recommend any because the lack of medical research on alternative treatment. Do you have any suggestions on what bio-identical hormone treatments we could start looking into? We hope to find a doctor with more experience in this area as well.

    2. I have a 14 year-old daughter with Turner Syndrome XO. She is about to finish up growth hormone therapy in the next month. She has currently been taking medroxyprogesterone tablets (10mg) the first 10 days of the month & wearing a Vivelle estrogen patch (.025 mg) in order for her to have a menstral cycle. Now her endro wants to switch her to a a bc pill (Apri) now that gh is about to end. I am very interested in knowing more about which natural bioidentical hormones would most likely be effective rather than a bc pill. Her endro does not recommend any because the lack of medical research on alternative treatment. Do you have any suggestions on what bio-identical hormone treatments we could start looking into? We hope to find a doctor with more experience in this area as well. Thanks so much! God Bless!

      1. Thank you so much for your comment,
        I would definitely get a second opinion! I have been told my multiple physicians whom I trust that birth control pills are not a good option, for many reasons. The hormones they contain are not the ones a female body normally produces.
        Right now I am seeing a naturopathic doctor who specializes in female hormone replacement. She has been wonderful! I have been taking a specially compounded custom prescription bioidentical hormone cream with a regimen of bi-est, testosterone, and progesterone. I’ve been taking it for a few years now and am doing better than ever. I hope you are able to find a Naturopathic clinic with a specialist in bio-identical hormone replacement to take your daughter to! Please let me know how it goes.
        -Michelle S.

  1. Hi, I am so glad I found this article and am ordering the book. My daughter is 28 and is suffering unbelievably. I am so desperate for help I have emailed a doctor at Addenbrookes hospital miles from where we live but am willing to do anything to give my daughter a happier, pain free, always ill free, more sociable, less anxious (I could go on) life. I am saving this to my Pinterest TS page and have a new angle of research to look in to. Thank you so much and best of luck to you and everyone reading this. Donna. A TS Mum

    1. Donna,
      Thank you so much for your kind words. I am so sorry to hear how badly your daughter is suffering! I hope that my suggestions about bioidentical hormone replacement therapy are helpful and that you will be able to find a good doctor. Let me know if you have any questions! Hopefully you will be able to find a specialist who will prescribe your daughter the right amounts of the right hormones, those of a healthy 28 year old, not less. That will help her physical, mental, and emotional health immensley, as it did for me.
      Wishing you the best, Michelle

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