New discoveries are being made every day, and through trial and error scientists are learning more about how the human body works. Us girls with Turner Syndrome are even more complicated! (Don’t you feel special? No, really!) Unfortunately, we humans are just barely scratching the surface. Even many of those in the medical field still understand very little about Turner Syndrome. You are going to have to be your own advocate when it comes to your health issues.
I know, this is probably something you’ve heard a million times. But HOW do you do that, and what does that even mean? Well, let me give you a few things you need to ask your doctor about. In this article I’m going to go over a few commonly overlooked problems in Turner Syndrome.
In my brief 21 years of existence, I have learned many things the hard way. Hopefully by sharing some of them with you, you can avoid many of these all too common pitfalls. Here are the issues I dealt with while growing up that I wish I and my Doctor had addressed sooner or that I had been aware of at a younger age.
Here is a list of some Commonly Overlooked Problems in Turner Syndrome:
- Hashimoto’s Thyroiditis
- Gluten Sensitivity (or in severe cases, Celiac Disease)
- Learning/Social Differences and Difficulties
- Hearing Loss
- Cancer- Ovarian Dysgerminoma
To learn more about any of the above topics please discuss them with your doctor. Check out my book As a Butterfly: Turner Syndrome Survival Guide in the section “commonly overlooked problems for a more in depth discussion of some of the above issues. If you have Turner Syndrome (or are the parent of a girl with Turner Syndrome) please learn as much as you can about the above conditions. It could mean your life!
Ignorance about Turner Syndrome almost took my life. Educate yourself and make sure your doctor knows about your risk for the above conditions. Good communication is essential to becoming your own advocate and avoiding these commonly overlooked problems in Turner Syndrome.
Have a happy day, and stay safe and healthy 🙂