About Me

Michelle S
Michelle S.
Author/Blogger

Hello, My name is Michelle! My goal in writing this blog is to help other girls with Turner Syndrome and their parents. I was diagnosed with Turner Syndrome over ten years ago. About 1 in every 2,500 girls is born with this relatively common but little understood genetic disorder involving a chromosomal abnormality. Ignorance about Turner Syndrome almost took my life, in 2013 due to adrenal failure and a rare cancer associated with Turner Syndrome. It is my goal and sincere hope that you do not have to learn the hard way like I did. Knowledge is power, and with the right knowledge you can still live a happy, healthy, and fulfilling life despite having Turner Syndrome! šŸ™‚

Some things I love are drawing, travelling, painting, classical music, learning about health & wellness, and (of course) writing! Most importantly, I volunteer my time to help people in my community every week. Learning different languages is something I really enjoy too…my husband and I are currently learning Korean (yes Iā€™m one of those K-Pop fans lol) as well as Thai! I live in the Seattle area with my amazing husband and our crazy cats Mittens and Socks. =^..^=

Well, now that you know a little about me, please tell me your story! Email me at michelle.asabutterfly@gmail.com. You can also contact me to request topics for future articles and posts. I would be ecstatically happy to oblige!

Much love, xoxo

Michelle S.
Author/Blogger/Turner Syndrome survivor
www.asabutterfly.org

4 thoughts on “About Me”

  1. Hello fellow Butterfly,
    Thank you Michelle for your awesome work. A fellow butterfly Facebook friend of mine alerted me about your website. I will be 63 next month. Diagnosed at 28.
    So much of what you say still resonates with me today even after all this time. There are still psychological and medical issues I am still working on, and this is a great comfort to me. So again, a big THANK YOU.

    1. Thank you so much for your comment Jennifer! Its very nice to meet other butterflies. šŸ™‚ I’m so glad my story and experiences have been an encouragement to you and others with TS. With all the unique and misunderstood challenges we face, we butterflies have to stick together! šŸ™‚ Again, I really appreciate your thanks.
      -Michelle S.

  2. Hello Michelle,
    Thanks for writing. I found out I was a Turner Syndrome when I was 30 years old. I’m a ‘mosaic’, that is atypical for the most obvious physical symptoms, but typical for others such as emotional and learning difficulties, thyroid, ‘stalled’/incomplete puberty, complete menopause at age 40… Apart from the infertility issue (which did not bother me much but was good to know about), I did not look much farther; none of my doctors ever explored these symptoms with me either.
    Now at 61 I’m having problems with the synthetic thyroid medication I took for many years (tolerated natural thyroid but it’s illegal where I live). When I started looking for an endocrinologist, I came across a centre for Turner Syndrome at a nearby university hospital. They put me through lots of tests. What an eye-opener!
    Speaking of eyes, my eye-sight is quite good. At least if you take them separately. But, they do not seem to focus well together. Might this be related to Turner Syndrome? I cannot find any literature on the subject.
    Thanks for all you do, Michelle!
    JGL

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