News and Tips

Maintaining a Positive Attitude

Maintaining a Positive Attitude
Positive Attitude

Hello lovely readers! I am excited to be writing again. There have been many changes going on in the past two years in my personal life (a death in the family, as well as yet another move). But now things are settling down, so I should be able to write posts much more regularly. Please look forward to it! ^^

Every day we have to deal with the health implications of having Turner Syndrome. What can we do to maintain a positive attitude, despite the challenges of life, on top of having a health problem like Turner Syndrome?

Here are 3 things I have been trying to do to keep positive:

  1. Take Care of Yourself

Take the time to care for yourself, to do those things our doctors tell us to do…get frequent and regular exercise, getting lots of deep sleep, eating a healthy diet, and taking your supplements and hormones. For us ladies with Turner Syndrome this may be even more complicated or more work to do than it is for most. But every little thing you do to take care of your body goes a long way and adds up. 🙂 You will feel much better mentally, emotionally, and physically.

  1. Count your Blessings

No matter what may be happening in your life or what health challenges you face, there are always more good things than bad. Life itself is such a blessing! Taking a few moments every day to sit down and really think about what you have to be thankful for is a great mood booster. My husband and I do this every morning to get in the right frame of mind for the day ahead.

  1. Surround Yourself with Happiness

What we take in affects us, whether that be through conversation, movies, books, music, or anything else. Chose to surround yourself with positivity, both in your choices in entertainment and people. Be a positive influence yourself!
These are just a few of many things we can do to stay positive. If you have any other suggestions that help you, feel free to share them in the comments section! I hope you enjoyed this and have a happy day! 🙂

New Book Coming Soon!


Dear readers,

We are excited to announce that a new edition of ‘As a Butterfly: Turner Syndrome Survival Guide’ is in the works, completely rewritten, with a host of new features! It is set to be released some time in 2017.

Now see the upcoming poll and let us know what you would like to see in the new book. Please anticipate it!!

Can’t wait to hear your suggestions and input,

Michelle S.

Dealing with Stress and Anxiety

Dealing with Stress and Anxiety in Turner Syndrome
Dealing with Stress and Anxiety

Hello again everyone! I can’t believe summer is almost gone already. Time does fly when you’re having fun, or just plain busy. Which brings me to my topic for today’s post: Dealing with Stress and Anxiety.

Stress is something everyone in this crazy world deals with every moment of every day. Us girls with Turner Syndrome are no exception, and in fact we have the added stress of the health issues and differences we deal with on a daily basis. How can you deal with it all?

Here are 5 things you can do today to help you cope with whatever stressors you may have in your life, whether you have Turner Syndrome or not.

1: Stop

That’s right. It may sound much easier said than done, but the first thing you need to do is to STOP WORRYING. It has been said that “Worry is a misuse of the imagination.”

2: Think Positively

Our thoughts have consequences. Choose to think happy things. 🙂

3: Exercise

Exercise is a very good stress reliever, especially intense physical activity such as sports or weightlifting. I try to go to the gym at least 3 times a week to do weight lifting, and do other types of exercise like soccer, stretching, and pilates on the other days.

4: Get enough sleep

Sleep is vital. I have a very overactive brain, and I’m sure I’m not alone. Make sure you get enough mental and physical exercise during the day. Make your room and bed as comfortable as possible. Go to bed early and avoid using electronics in bed (yes, that means no more watching netflix or texting until midnight lol). Another big factor in sleep quality is hormone balance, so work with your doctor to make sure you are on the right doses of testosterone, thyroid hormones, estrogen, and progesterone.

5: Do Something Creative

I find doing creative things like writing, playing piano, drawing, and doing crafts to be a very effective stress reliever. They are so much fun too!

Thanks so much for reading, and hope you find these tips helpful!

Turner Syndrome and Nonverbal Learning

Turner Syndrome and Nonverbal Learning Differences

Turner Syndrome and Nonverbal Learning
Turner Syndrome and Nonverbal Learning Disorder

Most girls with Turner Syndrome have a very specific neurocognitive phenotype. Scientists are still trying to understand it. No two people are the same, but there are a few characteristics that seem to be present in most of us girls with Turner Syndrome. It is usually broadly categorized as a Nonverbal Learning Disorder.
Despite overall normal and average IQs, most girls with TS have some difficulty in the following areas…

Visuospatial Perception
Visuoperceptual Abilities
Executive Function
Nonverbal Memory
Working Memory
Organization and Planning

Some areas girls with Turner Syndrome seem to be above average in are…
Verbal skills

There is still much to learn about the Turner Syndrome girl’s brain and what makes it unique. It is thought to be linked to part of the missing X chromosome and originate from the right hemisphere of the brain. Many studies are still being conducted about this.

What does this mean for you as a girl or woman with Turner Syndrome?
You may have difficulties in areas of life such as…
Social skills and relationships

Some things you will probably be better than most at are…
Verbal skills

Every girl is different. For example, I am a really fast reader. However, some girls will have a little trouble with reading. The point is that no two people are the same, even if they have the same condition!

So what can you do to deal with the learning differences that we Turner Syndrome patients have? Well, here’s what helps me:
Get Tutoring in math
Consider homeschooling
Practice your social skills, particularly eye contact
Write! It is probably something you are very good at. Personally I find it very therapeutic.
Smile! 🙂
Make sure it is really safe for you to drive. There is absolutely no shame in not being able to!
GPS is a wonderful thing, and can help you not get lost

Above all, an understanding family will be a great help to a girl with Turner Syndrome and Nonverbal Learning Disorder. Children with this may have a little more trouble making friends, keeping their things organized, get lost often, and have a short attention span or be forgetful. Especially in a very intelligent child, this can be confusing and frustrating to a parent, who may mistake this as misbehavior or laziness. A child with NLD simply has a different learning style. I got overwhelmed very easily as a child and still have anxiety problems that I struggle with. However, life can be successfully navigated with a Nonverbal Learning Disorder. Everyone has a different learning style. It can be a good thing! A little patience and determination can go a long way.

Whatever learning style you have, remember to view it as an advantage rather than a hindrance! 🙂

This was a super fast overview. If you want a more in depth discussion of Turner Syndrome and Nonverbal Learning Disorder please check out the chapter about it in section 3 of my book As a Butterfly: Turner Syndrome Survival Guide.

Thanks so much for reading!

Turner Syndrome and Body Image

Turner Syndrome and Body Image
Turner Syndrome and Body Image

Turner Syndrome and Body Image

Poor body image is a common problem for girls around the world, particularly teens. Most girls with Turner Syndrome struggle with poor body image. Why is poor body image so much of a struggle for girls with Turner Syndrome, and what can be done about it?
Here are some common causes of poor body image and practical steps you can take to improve yours!

Reason 1. Looking Different
Poor body image is common in girls with Turner Syndrome partly because they might look different than most of their peers. For me this started in middle school, when other girls were starting to mature and reach puberty while I was not.
What You Can Do: Take care of your body inside and out, and appreciate what you DO have. Being as healthy and happy as you can be will make you much more attractive and enjoyable to be around. Healthy is beautiful. Confidence is also very attractive. Different is not a bad thing!
Remember to focus on your inner beauty, and not worry too much about what other people think.

Exercise: Pick one thing about your appearance that you like. (Ex. I like my eyes and eyelashes) Don’t wait until you catch yourself thinking negatively about your body…go ahead and think about what you DO like! Focus on what you have, not what you think you don’t.

Exercise: Take control of your health. Pick one thing you can do right now to improve your health and DO IT! The healthier you are, the better you will look and feel.

Reason 2. Bad examples and associates
For many girls, including those with Turner Syndrome, poor body image can be worsened by bad examples and associates who have poor body image themselves. For example, if you have a parent or a friend who always complains about their appearance or puts you down, it is going to affect you.
What You Can Do: Make friends that take good care of themselves and who do not complain about their appearance. Befriend people you want to be like!

Exercise: Next time a family member or acquaintance says something negative about their body or the way they look, change the subject to something positive. 🙂

Reason 3. General Low Self Esteem
Poor self esteem is at the root of so many negative behaviors and feelings. Many people struggle with this, but there is much you can do!
What You Can Do: Take responsibility for yourself and chose to think happy and positive things, both of yourself and other people. You will be amazed at how much better you will feel about yourself and others! It is much easier said than done, but is definitely a habit worth making.

Exercise: Give someone a compliment! Looking for the good in others will help you to do the same for yourself and maintain a general positive attitude.